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Every new mention of #ehlersdanlossyndrome in the news gives me hope that informed medical practitioners are in my future, and in my children’s. #STATnews #hEDS #EDSAwareness https://www.statnews.com/2022/12/12/ehlers-danlos-syndrome-patients-turned-researchers/
STATRevenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromesA group of young patient-researchers is showing that patient-led research can be indispensable in the effort to crack complex, long-misunderstood illnesses, like hypermobile Ehlers-Danlos syndrome.